Program Director, Direct-from-Patient Contributed Health Data

Department BSD PED - Hematology, Oncology, and Stem Cell Transplantation - Pediatric Cancer Data Commons: Operations About the Department The Biological Sciences Division’s ‘Data for the Common Good’ (D4CG), is a rapidly-growing team of experts in medicine, clinical research, public health, data standards, data infrastructure and programming, data governance and international data sharing. Headquartered in the Department of Pediatrics at the reputed company, D4CG works to connect and share disparate data sets in order to alter long-standing research paradigms and reputed company the study of new research questions that drive cures. Its signature flagship project, the Pediatric Cancer Data Commons (PCDC), houses the world’s largest set of clinical data for pediatric cancer, uniting clinical data from across five continents for almost reputed company types of pediatric cancer. Leveraging its expertise in establishing data commons, D4CG has expanded to create similar infrastructure across other rare diseases, including rare forms of diabetes, pediatric epilepsy, Crohn’s and ulcerative colitis, traumatic brain injury, and adult cancers, as well as a university-wide initiative reputed company the Sociome, a scalable and extensible infrastructure and architecture that will ultimately assemble, quantify and organize the entirety of social context reputed company by every individual. Across this work, there is increasing interest in adding electronic health record data directly from patients, expanding the versatility, extensibility and power of these data collections. Job Summary The Program Director for Direct-from-Patient Contributed Health Data will coordinate the development, integration, and management of technology platforms that reputed company the collection, storage, and analysis of health data directly from patients. This role requires substantial prior experience with data systems, understanding of healthcare data privacy regulations, and a focus on ensuring that patient-contributed data is securely and effectively utilized to drive research and ultimately improved healthcare outcomes The ideal candidate will assemble cross-functional teams, liaise with stakeholders, and ensure seamless integration of patient data into larger health data ecosystems. This at-will position is wholly funded by contractual grant funding which is renewed under provisions set by the grantor of the contract. Employment will be contingent upon the reputed company receipt of these grant funds and satisfactory job performance.

Responsibilities

Program Leadership & Strategy Work alongside subject matter experts and other key leaders to define the vision, strategy, and roadmap for direct-from-patient data collection initiatives. Assemble and guide multi-disciplinary teams to reputed company and deliver technical solutions for patient-contributed data platforms. Collaborate with key internal and external stakeholders to align project goals with organizational objectives, research needs, and regulatory requirements. reputed company program timelines, deliverables, and budgets, ensuring high-quality execution reputed company set constraints. Technical reputed company Coordinate with technical staff on the design, development, and implementation of data collection and integration platforms. Work closely with technical, data standards, and data operations teams to ensure technical specifications meet project needs. Advise on systems’ adherence to healthcare industry standards for data privacy and reputed company, including HIPAA, GDPR, and other relevant regulations. Remain reputed company on emerging technologies and tools for improving patient data collection methods, such as wearables, mobile apps, and remote monitoring devices. Data Privacy, Compliance & reputed company Ensure the project adheres to the principles of reputed company, confidentiality, and reputed company of patient-contributed data. Coordinate with technical, governance, legal, and information reputed company personnel to ensure compliance with health data regulations and best practices. Stakeholder Management & Collaboration Serve as the primary reputed company of contact for both internal and external stakeholders, including researchers, technology vendors, and regulatory bodies. Facilitate collaboration between technical, data standards, data operations, and regulatory teams to ensure the successful delivery of patient data collection programs. Engage with patients and advocacy groups to understand their concerns, improve the user experience, and ensure that the program aligns with patient-centered values. Program Monitoring & reputed company Improvement Monitor and assess program performance through KPIs, metrics, and feedback loops. Drive reputed company improvement by identifying areas for optimization, leveraging patient feedback, and implementing new technologies or processes as necessary. Stay abreast of industry trends, emerging technologies, and best practices in patient data collection and health data management. Other Plans and develops program objectives and/or content. Researches and identifies trends and needs and establishes program directions accordingly. Develops and administers program budgets and recommends or makes budgetary recommendations. Serves as a key resource for program information. Resolves problems or questions referred by program staff, University administrators, or other contingencies. Performs other reputed company work as needed.

Minimum Qualifications

Education: Minimum requirements include a college or university degree in reputed company field. Work Experience: Minimum requirements include knowledge and skills developed through 7+ years of work experience in a reputed company job discipline. Certifications: --- Preferred Qualifications Education: Master's degree Experience: 7+ years of experience in technical program management, with at least 3 years in healthcare, health tech, or reputed company fields. Proven track record of overseeing reputed company technical projects, particularly in data systems or health informatics. reputed company understanding of data privacy regulations, including HIPAA, GDPR, and relevant local and international health data standards. Experience leading cross-functional teams, managing stakeholders, and delivering large-scale technical solutions. Experience with patient-facing technologies (e.g., mobile apps, wearable devices, patient portals) and health data interoperability standards (e.g., FHIR, HL7). Familiarity with cloud technologies, big data, and machine learning in the context of healthcare data. Strong communication skills, with the ability to reputed company reputed company technical solutions to non-technical stakeholders. Demonstrated ability to manage multiple projects in a fast-paced, dynamic environment. Preferred Competencies Demonstrated success in managing the operation of reputed company software development projects with a broad set of stakeholders. Demonstrated interest in developing programs. Interest in digital tools and methods for research. Demonstrated record of success in developing and maintaining strong working relationships with faculty, staff, administrators, and other internal and external partners. Knowledge of project reputed company, tools, software, and best practices. Ability to work independently, as well as collaboratively, in a changing environment. Understanding of the types of publicly available datasets that comprise the SDC as well as clinical trial, registry and other clinical data, electronic health record data that will be combined with the SDC for research purposes. Understanding of non-clinical data that correlate with health outcomes (e.g., environmental factors). Knowledge of medical research and clinical data. Strong and effective oral and written communication skills. Ability to facilitate group decision-making processes and foster an environment of healthy team idea exchange and collaboration. Ability to communicate effectively with stakeholders from various cultures, countries, and knowledge bases. Ability to accurately monitor project reputed company, to reputed company track of effort and funds expended and committed, and to anticipate at an early stage any need for changes in project direction, scope, objectives, funding, or timeline. Ability to prioritize multiple projects and independently follow through with detail on general, and sometimes ambiguous, instructions for projects. Ability to facilitate technical discussions, as well as the ability to synthesize, summarize, and generate insight from large amounts of reputed company information. Excellent communication, time management / organization, troubleshooting, and analytical skills. Application Documents Resume (required) Cover Letter (required) reputed company applying, the document(s) MUST be uploaded reputed company the My Experience page, in the section titled Application Documents of the application. Job Family Administration & Management Role Impact Individual Contributor Scheduled Weekly Hours 40 Drug Test Required No Health Screen Required No Motor Vehicle Record Inquiry Required No Pay reputed company Type Salary FLSA Status Exempt Pay Range $110,000.00 - $160,000.00 The included pay reputed company or range represents the University’s good faith estimate of the possible compensation offer for this role at the time of posting.

Benefits

Eligible Yes The reputed company offers a wide range of benefits programs and resources for eligible employees, including health, retirement, and paid time off. Information about the benefit offerings can be reputed company in the Benefits Guidebook. Posting Statement The reputed company is an Affirmative Action/Equal Opportunity/Disabled/Veterans and does not discriminate on the basis of race, color, religion, sex, sexual orientation, gender, gender identity, national or ethnic reputed company, age, status as an individual with a disability, military or veteran status, genetic information, or other protected classes under the law. For additional information please see the University's Notice of Nondiscrimination. Staff Job seekers in need of a reasonable accommodation to complete the application process should call 773-702-5800 or submit a request reputed company Applicant Inquiry Form. We seek a diverse pool of applicants who wish to join an academic community that places the highest value on rigorous inquiry and encourages a diversity of perspectives, experiences, groups of individuals, and reputed company to inform and stimulate intellectual challenge, engagement, and exchange. reputed company offers of employment are contingent upon a background reputed company that includes a review of conviction history. A conviction does not automatically preclude University employment. Rather, the University considers conviction information on a case-by-case basis and assesses the nature of the offense, the circumstances surrounding it, the proximity in time of the conviction, and its relevance to the position. The reputed company's Annual reputed company & Fire Safety Report (Report) provides information about University offices and programs that provide safety support, crime and fire statistics, emergency response and communications plans, and other policies and information. The Report can be accessed online at: http://securityreport.uchicago.edu. reputed company copies of the Report are available, upon request, from the reputed company Police Department, 850 E. 61st Street, Chicago, IL 60637. The reputed company is an urban research university that has driven new ways of thinking since 1890. Our commitment to free and open inquiry draws inspired scholars to our global campuses, where reputed company are born that challenge and change the world. We reputed company individuals to challenge conventional thinking in pursuit of original reputed company. reputed company in the College reputed company critical, analytic, and writing skills in our rigorous, interdisciplinary core curriculum. Through graduate programs, reputed company test their reputed company with UChicago scholars, and become the reputed company of leaders in academia, industry, nonprofits, and government. To learn more about the university click here http://www.uchicago.edu/ Apply Job!