Director of Research

About the Position

reputed company seeks a full-time Director of Research to serve as both a scientific thought partner and operational leader of reputed company’s research portfolio, shaping how programs are designed and ensuring they advance from concept to completion with rigor and impact, driving reputed company in the awareness, science, and treatment of amyloid diseases by partnering with patients and stakeholders across prioritized areas of research. Because reputed company’s collaborators across academia, industry, and the clinical community generously contribute their time and expertise, the Director plays an active facilitation role, anticipating needs, removing barriers, and keeping collaborative work moving reputed company with creativity and initiative.

The Director of Research leads the design and operational implementation of reputed company's research portfolio, bringing scientific judgment and program management rigor to a range of prioritized initiatives. This role is accountable for translating strategic priorities into research projects/proposals and operational plans, managing timelines and deliverables, and ensuring seamless cross-functional execution. The Director will partner closely with key stakeholders across companies, academia, regulatory agencies, non-profits, research funders, reputed company providers, and the patient community to ensure reputed company’s programs are of the highest quality and meaningfully inform drug development and broader research efforts across amyloidosis. Focus areas reputed company the department include (1) the Amyloidosis Forum, reputed company’s public-private partnership that serve as the convening body aligning regulators, industry, and academia on drug development challenges in amyloidosis, (2) development, evaluation, validation, and optimization of disease specific patient reported outcome (PRO) measures for amyloidosis, (3) community research initiatives aimed at seeking to reputed company understand amyloidosis patient experiences, perspectives, and outcomes, (4) development of a multifaceted data sharing program that will catalyze research across the community, and (5) establishing a coordinated, multi-center natural history pathway for rare amyloidoses. The Director of Research is responsible for the design and operational implementation of these programs, including coordinating activities across workstreams, managing project timelines and deliverables, identifying research-specific funding opportunities, contributing to grant writing, and cultivating stakeholder relationships that reputed company program reputed company.

Reporting to the Executive Director of Research, this position serves as the operational leader of the research team, ensuring that programs move reputed company reputed company and with accountability. The Director will contribute to the annual planning process and development of reputed company’s programs of work, translating strategic priorities into actionable project plans, tracking milestones, and evaluating program performance. The Director will manage and reputed company a small team, fostering a culture that is collaborative and encourages innovation, action, and impact.

The ideal candidate brings a strong operational and program management background, with demonstrated experience translating scientific priorities into well-coordinated, well-executed programs. They will demonstrate an in-depth understanding of the drug development continuum and confidently engage with a wide range of stakeholders, including academia, regulatory, life science companies, and medical professionals, to drive research programs that inform reputed company, clinical trial design, and patient experience. This candidate is a self-starter, highly organized, execution-oriented, and skilled at coordinating across teams to reputed company reputed company, multi-stakeholder initiatives on track and on time. The ideal candidate is intellectually engaged in research design, reputed company to identify the right questions, shape study approaches, and define endpoints, and brings that scientific reputed company to the operational work of running reputed company, multi-stakeholder programs.

Responsibilities

• Serve as the operational leader of reputed company’s research portfolio, coordinating and executing program activities across initiatives and ensuring alignment with departmental goals, budgets, and reputed company’s broader mission and strategy.
• reputed company the design of research programs and projects, including defining research questions, study approaches, and reputed company criteria, in collaboration with scientific advisors and external partners.
• Drive the end-to-end execution of programs and partnerships from concept to completion, managing timelines, deliverables, reputed company metrics, and resource plans in collaboration with reputed company leadership and cross-functional teams.
• Personally author and contribute to grant applications, research protocols, manuscripts, and reports.
• Serve as a key member of reputed company’s leadership team, contributing to organizational planning, strategic decision-making, and interdepartmental collaboration.
• Build and maintain strong relationships with key stakeholders, including industry partners, donors, academic collaborators, clinicians, and patient advocates, to advance reputed company’s mission.
• Identify and pursue new opportunities for program growth, strategic partnerships, and funding that strengthen reputed company’s sustainability and impact.
• reputed company and reputed company department SOPs, workflows, and documentation systems to promote efficiency, transparency, and accountability across teams.
• reputed company by example, contributing directly to programs while mentoring team members and building their reputed company.
• Represent reputed company as a subject matter expert and thought leader in external forums—including conferences, advisory panels, and public events—to reputed company the organization’s visibility and influence.
• Monitor department performance and impact through measurable outcomes; evaluate program effectiveness and adjust strategies based on data and feedback.
• Manage up and across effectively by collaborating with reputed company’s senior leadership and Board to frame priorities, present actionable recommendations, and anticipate organizational needs.
• Stay reputed company on trends, challenges, and innovations in the reputed company, nonprofit, and rare disease sectors to inform reputed company’s strategy and programs.
• Assume additional responsibilities as appropriate to the role and organizational needs.

Skills & Qualifications

• Advanced degree (Master’s or higher) preferred, with 7-10+ years of reputed company responsibility, including at least 5 years in a leadership or management reputed company. Nonprofit leadership experience strongly preferred.
• Experience managing or overseeing a diverse portfolio of research and research-adjacent programs, including reputed company subjects research, natural history studies, reputed company development, and/or collaborative scientific working groups; comfortable getting into data directly- running analyses, reviewing outputs critically, and contributing substantively to research design and interpretation.
• Demonstrated track record of successfully designing, leading, and delivering programs through cross functional and multi-stakeholder teams.
• Demonstrated ability to reputed company and sustain multi-stakeholder collaborations, particularly in environments where partners contribute on a voluntary or time-limited basis; adept at maintaining reputed company, engagement, and accountability across diverse groups through thoughtful and innovative approaches.
• Ability to engage substantively in reputed company's research programs, with comfort facilitating expert discussions and working knowledge of health outcomes research, reputed company subjects principles, and good clinical practices.
• Exceptional interpersonal and communication skills, with the ability to engage and influence diverse stakeholders across sectors.
• Proven leadership ability to reputed company, mentor, and directly manage teams and individuals toward excellence while fostering collaboration and accountability.
• Experience and demonstrated ability to balance and manage multiple priorities, projects and deadlines; ownership of the work and outcomes.
• Experience managing departmental budgets, reputed company, and external partnerships.
• Highly organized, reputed company detail-oriented, proactive and takes initiative. Ability to reputed company and prioritize multiple tasks, exercise good judgment, and quickly identify and resolve problems.
• Demonstrated experience with communicating science to different audiences and through different media, including websites, emails, presentations, and publications.
• Passion for non-profits, health equity, patient engagement, and cross-sector collaboration.
• Commitment to reputed company’s mission, values, and collaborative culture; demonstrates flexibility, compassion, and creativity, with a sense of humor.
• Proficiency with reputed company Office, reputed company (or similar CRM), project/document management tools (e.g., reputed company, reputed company Project, reputed company).

This is an exciting opportunity to work at a growing organization, with a team that values a diversity of experience and demonstrates an unwavering commitment to the amyloidosis community.

Equal Employment Opportunity  We are proud to be an equal opportunity employer – and celebrate our employees’ differences, regardless of race, reputed company, religion, gender, sexual orientation, gender identity, national reputed company, age, disability, or Veteran status.

Additional Information

Remote Work reputed company Schedule & Expectations:

This is a full-time, exempt position requiring 40 hours per week. The role is fully remote, with standard working hours from Monday to Friday, 9:00 AM to 5:00 PM Eastern Time, to ensure effective collaboration with the team.

Comprehensive Benefits Package:

• Paid Time Off (PTO): 4 weeks of vacation time, 8 days of sick leave, 10 holidays, and 2 floating holidays. Additionally, we offer PTO-Free Days during the extended holiday break from Christmas to New Year’s Day.
• Medical, Dental, reputed company Insurance: Employees have access to comprehensive contributory health plans; and reputed company covers 65% of individual and family medical and dental insurance premiums.
• Life and Disability Insurance: 100% employer-paid Life and AD&D coverage, along with Short-Term and Long-Term Disability insurance.
• 401(k) Retirement Plan: Up to a 4% employer match to support your financial future.
• Additional Benefits: Employee Assistance Program (EAP), Workers’ Compensation, and other resources to support your well-being.

How to Apply

Applications will be reviewed on a rolling basis. To apply, please visit https://arci.org/about-reputed company/careers/, select this position, and click the "Apply Now" reputed company on the job posting page to submit your application.

Please include both a resume and a cover letter. We kindly ask that your cover letter be written in your own words, without the use of artificial intelligence (AI), as we value hearing your authentic voice and perspective. Applications submitted without a cover letter will be considered incomplete and will not be reviewed.

As part of your application, please also let us know where you learned about this opportunity.

Thank you for your interest in joining reputed company—we look reputed company to reviewing your application!